I appreciate all the kind words and prayers over my situation. But as bad as things are now, it was *real* bad at the beginning because I didn't know what was going on. The stress made it that much worse. Now I know what causes it and can immediately lay down and get my heart rate down and my chest pains to subside. It's still scary though at times when my pulse gets up into the 180-190 range. I just have to stay calm, cool, hydrated, and in a prone or reclined position. The problem is that when my doctors or insurance company yanks my chain, the stress level goes back up and the smallest bit of activity is a real drain. Just getting up to go brush my teeth or anything though starts it back up again. So I have to plan out and almost ration my upright time. It's a weird thing to grasp though. The best thing I've found to get people to understand it is the Spoon Theory. You can read it at this
[link] is what my life is like. Constant trade-offs of things that most people just take for granted.
I thought I was going to be able to get the new medical stuff stating very clearly that I could not work as soon as the offices opened up this past Monday. But they can't or won't fax it to anyone but another doctor. I have to wait for the US mail to send it to me. And the disability insurance finally got around to mailing my denial letter and means of appeal last Thursday - or so they said. I don't trust anything they say though. Today makes a full week since they said they sent it to me certified mail, and I still don't have it. So, at this point, I'm having to wait on the mail man. The calendar seems to run out every day. I must have prayed for patience at some time in the past....
How energy draining is it doing the fractal art from a pseudo-upright position? Can you at least get a lot of Apophysis and Incendia exploration done while this horrible condition has its way with you
It isn't degenerative. It isn't going to kill me.
Well, I'm extremely glad to hear that! Take care, and keep chilled-out, my friend