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I received the notes from the Cardiologist from my 8/8/08 visit. Here is what he said:
"This patient is disabled and been unable to perform any work in the past three years. He suffers from chest pains, peripheral numbness, severe insomnia. He has visual, hearing, and balance problems and he has difficulty concentrating. Studies at Vanderbilt demonstrated hypovolemia. He has severe limitations in his ability to sit, stand, walk, lift, bend over, and drive. Evaluation in our office demonstrated resting supline heart rate was 104, standing for one minute 160 associated with marked breathlessness. He is unable to complete any kind of work activity for even a short duration. The patient will be monitored on a regular basis."
"The patient's review of symptoms is positive for blurry vision, shortness of breath, sinus problems, cold interolance, depression, numbness, lightheadedness, poor appetite, irregular bowel movements, indigestion, difficulty sleeping, excessive daytime fatigue."
"The patient is severely disabled from postural orthostatic tachycardia syndrome."
Here is the problem though. This was dictated and computer-transcribed. It didn't do too well. For example, the sentence that says "He has severe limitations in his ability to sit, stand, walk, lift, bend over, and drive" in the actual text says "He had severe limitations in his ability to sit, stand, walk, lives, bent over, and dry." ROFL I was concerned about the past-tense of the verb...especially in light of the fact that the stuff in the entire first paragraph that I quote above is under a heading of "History". It concerned me how this is going to be interpreted by people looking for a reason to think I have no present problems.
A second problem is a line under "Social History" that says "Nonsmoker two children does not drink alcohol favored activity is working at computer online." Even though it is only listed as a "favored activity", I am worried that the disability claims administrator viewing my appeal is going to latch on to the "working at computer" as something that I am fully capable of for a 40-hour week.
The final problem is that under physical exam, he lists all kinds of findings. And while he noted that I "entered in a wheelchair and is in moderate distress", under the "Musculoskeletal" section he states "The patient walked without difficulty". This is a huge concern. I stood with help for the weigh-in and for BP tests (almost falling once and the nurse pushed me against the table), but I did no walking of any kind while I was there. I didn't even bring in my cane. I used the cane to get to the van from the apartment, but was in the wheelchair the whole time I was there.
After contacting his office about the problems with his dictated notes, he just added the following to my notes:
"The following addendum to the record of August 8, 2008. The record should read that the patient has severe limitations in his ability to sit stand walk bend over and drive. The patient cannot do any sustained activity including sitting at a computer. The patient states he is unable to work in a sitting position for more than a very short time without exhaustion. The patient is unable to walk because of the severe tachycardia hypotension and weakness associated with his disorder. Previous note was incorrect that the patient could walk."
Now all I have to do is wait for Kaiser to send me a similar letter. I'm expecting it in the next 48 hours. It's basically going to say the same thing. With that, I'll have notes from 5 different doctors documenting some or all of my limitations. I'll be sending them off to both my senators asking for help with SSDI, sending them to the company helping with my SSDI appeal, taking them to the SSDI office personally and requesting an immediate review, and using these as the primary focus of my appeal for my disability insurance.
This is a tremendous mental and physical strain on me. It is one of the reasons why my involvement here has slacked off a bit. Please keep me in you prayers as I try to get all this stuff together and appeal the decision to cancel my disability insurance and medical insurance.
Daniel
"This patient is disabled and been unable to perform any work in the past three years. He suffers from chest pains, peripheral numbness, severe insomnia. He has visual, hearing, and balance problems and he has difficulty concentrating. Studies at Vanderbilt demonstrated hypovolemia. He has severe limitations in his ability to sit, stand, walk, lift, bend over, and drive. Evaluation in our office demonstrated resting supline heart rate was 104, standing for one minute 160 associated with marked breathlessness. He is unable to complete any kind of work activity for even a short duration. The patient will be monitored on a regular basis."
"The patient's review of symptoms is positive for blurry vision, shortness of breath, sinus problems, cold interolance, depression, numbness, lightheadedness, poor appetite, irregular bowel movements, indigestion, difficulty sleeping, excessive daytime fatigue."
"The patient is severely disabled from postural orthostatic tachycardia syndrome."
Here is the problem though. This was dictated and computer-transcribed. It didn't do too well. For example, the sentence that says "He has severe limitations in his ability to sit, stand, walk, lift, bend over, and drive" in the actual text says "He had severe limitations in his ability to sit, stand, walk, lives, bent over, and dry." ROFL I was concerned about the past-tense of the verb...especially in light of the fact that the stuff in the entire first paragraph that I quote above is under a heading of "History". It concerned me how this is going to be interpreted by people looking for a reason to think I have no present problems.
A second problem is a line under "Social History" that says "Nonsmoker two children does not drink alcohol favored activity is working at computer online." Even though it is only listed as a "favored activity", I am worried that the disability claims administrator viewing my appeal is going to latch on to the "working at computer" as something that I am fully capable of for a 40-hour week.
The final problem is that under physical exam, he lists all kinds of findings. And while he noted that I "entered in a wheelchair and is in moderate distress", under the "Musculoskeletal" section he states "The patient walked without difficulty". This is a huge concern. I stood with help for the weigh-in and for BP tests (almost falling once and the nurse pushed me against the table), but I did no walking of any kind while I was there. I didn't even bring in my cane. I used the cane to get to the van from the apartment, but was in the wheelchair the whole time I was there.
After contacting his office about the problems with his dictated notes, he just added the following to my notes:
"The following addendum to the record of August 8, 2008. The record should read that the patient has severe limitations in his ability to sit stand walk bend over and drive. The patient cannot do any sustained activity including sitting at a computer. The patient states he is unable to work in a sitting position for more than a very short time without exhaustion. The patient is unable to walk because of the severe tachycardia hypotension and weakness associated with his disorder. Previous note was incorrect that the patient could walk."
Now all I have to do is wait for Kaiser to send me a similar letter. I'm expecting it in the next 48 hours. It's basically going to say the same thing. With that, I'll have notes from 5 different doctors documenting some or all of my limitations. I'll be sending them off to both my senators asking for help with SSDI, sending them to the company helping with my SSDI appeal, taking them to the SSDI office personally and requesting an immediate review, and using these as the primary focus of my appeal for my disability insurance.
This is a tremendous mental and physical strain on me. It is one of the reasons why my involvement here has slacked off a bit. Please keep me in you prayers as I try to get all this stuff together and appeal the decision to cancel my disability insurance and medical insurance.
Daniel
DOH!
Just had one of those OH CRAP! moments. I intended to delete all the files in my folder with "par" as part of the name. Worked great...except it also deleted my PARAMETER folder with all my M3D thumbnails and parameters! Luckily, everything through yesterday was backed up, and I've posted the 15 or 18 missing parameters on Google Plus. So I can get them back, but it sure would be nice to have batch M3P -> TXT and batch TXT -> M3P capability. So happy that I've been sharing all my parameters on G+ though. Not only does it allow others to play with them, but really saves my bacon when I do something uber dumb! LOL
Like a bad rash than won't go away, I'm BAAAACK!
It's been a crazy year and I haven't been around for a while. Moved into a new place and got it all set up, got both of my kids through high school, and stayed real busy as the head moderator over on Theologica (theologica.ning.com). Haven't done fractals in a long, long time. Then, last Sunday, an online friend posted something from Mandelbulb 3D. Blew me away and I had to check it out. And in the last five nights, I've been up past 5am on four of them - partly because of insomnia and partly because I was so lost in M3D that I couldn't find my way back home. :) I've been busy though. I only post a small bit of my work here on DA. For
My ordeal may be coming to an end
If you have followed my journal for the last three years, you know about my fight with an insurance company that used my computer's ability to render fractals as some justification that I was not disabled. They have now agreed, however, to arbitration in the case. It is scheduled for next Tuesday. It is going to be an all day ordeal and I will be spending it between my wheelchair and a reclining camp chair that I am going to have to bring myself.
My ordeal with my insurance company may go away next week....but so may all information I have posted about what they have put me through. If you want to see/archive it before it is possibly gone
An Easy Explanation of Fractals
Just posted a short web page explaining fractals for all those that have asked me the question over the years. You can read it at this (http://bit.ly/FractalTutorial). I tried to use non-technical language as if I were going to be teaching this to home-school kids or something. If you haven't seen the videos I link to there though, you should really check them out.
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I keep my fingers crossed for you Daniel!